That is no exaggeration. Pele had her fourth seizure yesterday at 6pm, while my parent's were here, originally to see Pele hand out treat bags to the neighborhood kids. We were watching A Nightmare Before Christmas when Pele began exhibiting the signs of a seizure coming on. The disturbing thing is that it happened three days earlier than the other three seizures, which happened 10 days apart nearly exactly. Additionally, it happened during the day instead of at night, which made me worry more. Although I know that the common factors seem to be that she'd had a busy/exciting day (went to a children's science museum in Lafayette, was out and about), and as usual had sleep issues/resisted sleep. I am compiling a list of common triggers even though the information I have is incomplete at best.

Anyway...I am very upset obviously. I don't even know why I'm posting, because it isn't as if someone can magically help me with this. Still have another month to wait until seeing the neurologist, although I am going to call on Monday to see if I can either get a second (earlier) appointment with someone else or can somehow move up the appointment.

Obviously we canceled our planned activities to hand out treat bags. We turned off the outdoor lights, ripped the skull decoration from the door, and gave the treat bags to my dad to hand out to the kids with disabilities next week at school. We watched her carefully throughout the postictal phase and then eventually got her to sleep again sometime around 3am or so.

I feel badly that my parents had to witness that, as it is bad enough that we have to see it. But, it is what it is...

Sigh.

p.s. as a warning-if for some reason you've been following along and anticipated a cheerful, recipe-laden blog with light reading, I would suggest you go elsewhere for a while...